Sunday, November 15, 2015

Ronald Mcdonald House Brunch













Today we did our annual Lucas Celebration a little early.  It was a perfectly beautiful fall day.  My dad joined us for his first time participating in the event, my sister Aleisha and Mom were amazing as usual.  Several of my friends joined us, too.  We served an excellent brunch.  My mom made homemade cinnamon puffs-  One family said it was the best meal they had had in 6 weeks there!  I loved when people came up for more.  I am so glad that Jeff and I have decided that this is a way our family would give back.  I am already formulating in my head the next time:)
 
 
Volunteering in this way makes me thankful all over again.  So thankful!

Monday, July 20, 2015

3 and a half year check up!

 Ekg.  He loved "helping" take off the stickers. 
 I know these first two pictures look similar, but look at that smile he gives me!!
 Watching doc mcstuffins while getting his echo cardiogram.


So here we are. 

He is doing great.  But to be brutally honest.  These check ups completely stress me out.  I don't know if it is realizing all that is at stake, or could be?  Going back to the place he was born?  Residual stress?  Normal worry about your kid type of shit?  Realizing that even though he is great and well, there will always be this tiny worry in the back of our heads?
Feeling frustrated about waiting for the doctor for ever, and then having all of 7 minutes to talk to her??   (I totally realize part of it is that she has to read the tests they did when the got there, but still.)

Here is one of the happy highlights.  Lucas was thirsty so we went looking for a drinking fountain.  On the way we saw the nurses work office, and they asked what we needed.  When Lucas told them he wanted a drink, they said let's see what we have here.  They had a juice box.  The kid was in heaven!! He was adorably excited.  When we walked back to the exam room where Jeff was waiting, he excitedly told Jeff he got some juice.  Jeff asked if he told the nurse thank you.  Well, he ran back down the hall and grabbed the nurses hand and quickly walked her back to our room, and said she is the one!!  Very excitedly, and made that nurses day.  I bawled watching his sweetness.  And his huge heart.

We spent at least 3 of the 7 minutes talking about Lucas getting sweaty.  It was good because she let us know what to watch for.  But bad because she launched in to what could be wrong and what they would do for that.  Which is fine, and I can handle the facts, but freaks me a little.  For now it seems like he just gets sweaty.  (Shoot, I get sweaty...she said people have different thermostats.)

But in case I forget:
- so sweaty in activity that makes him stop the activity.
- ever complains that his chest hurts in activity
-  remember they have a nurse line if I have questions

OK.  So I am a billion times thankful that he is doing so well, and my mother's instincts are that he is great and will be great.  I guess the unknown affects anyone with kids.  I guess as a Mom, there will always be a part of me that worries about my little people that I LOVE so much. 

SNUGGLE-BUGGLE
A few weeks ago Lucas gave me the biggest hug and said Mom, Snuggle-buggle every day!  I said you bet.  Snuggle-buggle every day, Luke.  He loves with his whole heart.  I am lucky to be his mommy.

He lights up a room when he goes in, he asks people their name, and is a ham.  I love him so much.  I really really do.

So in spite of scary terms like enlarged aortic valve, and leaking in the heart- these she assures us are mild, so I have to trust that.  And watch this kid who jumps off the couch, builds amazing lego towers and then destroys them, and smile.  He adores his big sister and has the best laugh.  He can be sweet and miserable.  I guess I will just snuggle buggle him every day with thankfulness in my heart, thankfulness that I can.

Sunday, January 11, 2015

So many emotions!


Check this guy out?! 

The top picture is him right before his School Christmas Program, where he sang his heart out.  His heart.  He has so much of it.
I have spent the last hour putting together a collage of pictures to display at the dinner we have in his honor.  I can't look at these pictures with out completely bawling my eyes out.


 His chest, before he got a scar...  that means he could live.  :)


I am so, so thankful.  So Thankful. 
Still bawling.  And thankful.

Happy Three Lukey!!!